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  $14.95
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This title in other formats:Schuyler's Monster: A Father's Journey with His Wordless Daughterby Robert Rummel-Hudson
Synopses & ReviewsPublisher Comments:When Schuyler Rummel-Hudson was eighteen months old, a question about her lack of speech by her pediatrician set in motion a journey that continues today. When she was diagnosed with bilateral perisylvian polymicrogyria (an extremely rare neurological disorder), her parents were given a name for the monster that had been stalking them from doctor to doctor, and from despair to hope, and back again. Once they knew why Schuyler couldn't speak, they needed to determine how to help her learn. They took on educators and society to give their beautiful daughter a voice, and in the process learned a thing or two about fearlessness, tenacity, and joy. More than a memoir of a parent dealing with his child's disability, Schuyler's Monster is a tale of a little girl who silently teaches a man filled with self-doubt how to be the father she needs. Review:"The monster in this heartfelt memoir is polymicrogyria, an extremely rare brain malformation that, in the case of Rummel-Hudson's daughter Schuyler, has completely impaired her ability to speak. During her first three years, as her parents seek to find out what hidden 'monster' is causing her wordlessness, they endure 'two years of questions and tests and at least one unsatisfactory diagnosis.' But while Rummel-Hudson initially rages at God for giving Schuyler 'a life that would never ever be what we'd imagined it to be,' his depiction of her next four years becomes a study not only in Schuyler's vivacious and resilient personality, but also in the redeeming power of understanding and a 'stupid blind father's love.' As he describes how Schuyler eagerly takes to various forms of communication, such as basic sign language and an alternative and augmentative communication device that provides whole words she can type to express her thoughts, Rummel-Hudson effectively and compassionately shows how the 'gentle strangeness about her, like a visitor from some realm where no one spoke but everyone laughed,' leads him to understand that 'she was the one teaching me how to make my way in this new world.'" Publishers Weekly (Copyright Reed Business Information, Inc.) Review:"A gripping explication, shot through with equal parts horror and hope, of how parenthood can turn ordinary people into passionate advocates." Neal Pollack, author of Alternadad Review:"Robert Rummel-Hudson is brave enough to reveal the damage the discovery of his child's condition did to his marriage and to his own sense of self. He manages to repair some of the damage through close involvement with Schuyler and vigorous campaigning on her behalf. His memoir is honest, often painful and deeply personal." Charlotte Moore, author of George & Sam Review:"The book is engaging and honest — I'm sure it will help many parents who are struggling to find the most loving way to help their children who have "issues." Dana Buchman, designer, author of A Special Education: One Family's Journey Through the Maze of Learning Disabilities Review:"Rummel-Hudson's memoir offers a moving account of his and wife Julie's unrelenting efforts to give their buoyant little girl a way to communicate." People magazine Review:"This memoir, full of fear and rage and disappointment and acceptance and advocacy and ferocious love, offers plenty of touchstones for parents who have dealt with diagnoses that are infuriatingly wrong or frighteningly right." Terri Mauro, author of The Everything Parent's Guide to Sensory Integration Disorder About the AuthorRobert Rummel-Hudson has been writing online since 1995. During that time, his work has been recognized by the Diarist Awards at diarist.net and has been featured in the Austin Chronicle, the Irish Times, the New Haven Register, the Dallas Morning News, Wondertime Magazine and Good Housekeeping, as well as on American Public Radio's "Weekend America." Robert and his family currently live in Plano, Texas, where Schuyler attends a special class for children who use Augmentative Alternative Communication devices. Much of her days are now spent in mainstream classes with neurotypical children her age. More of Robert's observations on life with Schuyler can be found on his blog at www.schuylersmonsterblog.com. What Our Readers Are SayingAdd a comment for a chance to win!
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