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Life as We Know It: A Father, a Family, and an Exceptional Childby Michael Berube
Synopses & Reviews
When Jamie Bérubé was born with Down syndrome in 1991, he was immediately subject to the
medical procedures, insurance guidelines, policies, and representations that surround every child our society
designates as disabled. In this wrenching yet ultimately inspiring book, Jamie's father, literary scholar Michael
Bérubé, describes not only the challenges of raising his son but the challenge of seeing him as a person
rather than as a medical, genetic, or social problem.
When Jamie Berube was born with Down's Syndrome in 1991, he was immediately subject to everything that surrounds every child our society designates as disabled. Here, Jamie's father describes the challenges and joys of raising his son. As he follows Jamie through his first four years of life, Berube evokes the sorrow and exhilaration of watching this loving child struggle for a place in the larger world.
About the Author
Michael Bérubé is director of the program for research in the humanities at the University of Illinois at Champaign-Urbana. He is the author of five books, including Public Access: Literary Theory and American Cultural Politics, and has written for The New Yorker, The Village Voice, and many academic journals. He lives in Champaign, Illinois, with his wife, Janet Lyon, and their two sons, Nick and James.
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