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The Parent's Guide to Children's Congenital Heart Defects: What They Are, How to Treat Them, How to Cope with Themby Gerri Freid Kramer
Synopses & ReviewsPublisher Comments:If you have a child with a congenital heart defect (CHD), you have a million questions: How did this happen? What kind of surgery is best? What’s life going to be like for my child after surgery? Will problems crop up later? Will the crisis ever end? In The Parent’s Guide to Children’s Congenital Heart Defects, more than thirty leading experts in pediatric cardiology—cardiologists, surgeons, nurses, nutritionists, counselors, and social workers—give detailed answers in plain language to help you learn to live with your child’s CHD. Written by two parents of children with CHD in an easy-to-follow question-and-answer format, this guide brims with the latest information on diagnosis, treatment options, surgery, aftercare, and growing up with CHD, along with the voices of dozens of other parents who have lived through CHD and know what you’re going through. In these pages, you’ll find the information, empathy, and support you need to care for your child and thrive together. Review:“In this marvelous book for parents and families, world experts on CHD provide clear and helpful answers to the multitude of questions that arise related to children with CHD.” David J. Sahn, M.D., Center for Congenital Heart Disease, Oregon Health and Science University, Portland, Oregon Review:“This book, beautifully written, takes common questions and provides understandable answers —making the unknown become known and providing immense comfort.” Arthur Garson, Jr., M.D., M.P.H, professor of pediatrics (cardiology), Baylor College of Medicine, and past president, American College of Cardiology Review:“This book, beautifully written, takes common questions and provides understandable answers —making the unknown become known and providing immense comfort.” —Arthur Garson, Jr., M.D., M.P.H, professor of pediatrics (cardiology), Baylor College of Medicine, and past president, American College of Cardiology “In this marvelous book for parents and families, world experts on CHD provide clear and helpful answers to the multitude of questions that arise related to children with CHD.” —David J. Sahn, M.D., Center for Congenital Heart Disease, Oregon Health and Science University, Portland, Oregon Synopsis:"The Parent's Guide to Children's Congenital Heart Defects" (CHD) covers everything a parent facing his or her child's CHD will want to know and then some: the Why's, What's, and How's of a range of disorders, symptoms, and treatments associated with CHD — from the womb and into the world, in the hospital, home, school, playground, all the way to adulthood. No more will parents have to wade through medical textbooks to find answers to their questions, and questions they didn't know to ask. The authors, each with a child who survived CHD, worked in direct collaboration with the top experts in the field to translate the most up-to-date knowledge about CHD into plain, empathetic English. They add a chorus of other parents' CHD stories for moral support and homespun advice. Chapters include: Diagnosis: symptoms, tests, causes, and development Coping: Sharing the news, informing your child, finding support, and living with CHD Day to Day: Eating and nutrition, childhood illnesses, medications, and other everyday concerns Surgery: blood donations, heart valves, the OR, catheterization, and surgical procedures The Hospital: overview, the ICU, and recovery Life After Surgery: activity, scars, complications, follow-up, having more children Growing Up: approaching adulthood, sex and reproduction, psycho-social aspects, finding information, mutual support, and community Resources: extensive list of online and bricks and mortar sources of information, help, and support Bibliography and a heartfelt foreword by Sylvester Stallone and Jennifer Flavin-Stallone.
About the AuthorGERRI FREID KRAMER is the mother of Max, age 6, who was born with CHD. SHARI MAURER is the mother of Elisabeth, age 7, who also has CHD. What Our Readers Are SayingAdd a comment for a chance to win!
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