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Q&A | February 27, 2014

Rene Denfeld: IMG Powell’s Q&A: Rene Denfeld



Describe your latest book. The Enchanted is a story narrated by a man on death row. The novel was inspired by my work as a death penalty... Continue »
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    The Enchanted

    Rene Denfeld 9780062285508

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Other titles in the Morality and Society series:

Behind Closed Doors: IRBs and the Making of Ethical Research (Morality and Society)

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Behind Closed Doors: IRBs and the Making of Ethical Research (Morality and Society) Cover

 

Synopses & Reviews

Publisher Comments:

Although the subject of federally mandated Institutional Review Boards (IRBs) has been extensively debated, we actually do not know much about what takes place when they convene. The story of how IRBs work today is a story about their past as well as their present, and Behind Closed Doors is the first book to meld firsthand observations of IRB meetings with the history of how rules for the treatment of human subjects were formalized in the United States in the decades after World War II.
 
Drawing on extensive archival sources, Laura Stark reconstructs the daily lives of scientists, lawyers, administrators, and research subjects working—and “warring”—on the campus of the National Institutes of Health, where they first wrote the rules for the treatment of human subjects. Stark argues that the model of group deliberation that gradually crystallized during this period reflected contemporary legal and medical conceptions of what it meant to be human, what political rights human subjects deserved, and which stakeholders were best suited to decide. She then explains how the historical contingencies that shaped rules for the treatment of human subjects in the postwar era guide decision making today—within hospitals, universities, health departments, and other institutions in the United States and across the globe. Meticulously researched and gracefully argued, Behind Closed Doors will be essential reading for sociologists and historians of science and medicine, as well as policy makers and IRB administrators.

About the Author

 
Laura Stark is assistant professor in the Program in Science in Society and the Department of Sociology at Wesleyan University.

Table of Contents

Introduction: Behind Closed Doors

Part  1. IRBs in Action

Chapter 1. Everyones an Expert? Warrants for Expertise

Chapter 2. Local Precedents

Chapter 3. Documents and Deliberations: An Anticipatory Perspective

Part 2. Setting IRBs in Motion in Cold War America

Chapter 4. An Ethics of Place

Chapter 5. The Many Forms of Consent

Chapter 6. Deflecting Responsibility

Conclusion: The Making of Ethical Research

Acknowledgments

Appendix: Ethnographic Methods

Abbreviations

Notes

Bibliography

Index

Product Details

ISBN:
9780226770871
Author:
Stark, Laura
Publisher:
University of Chicago Press
Subject:
United States - 20th Century
Subject:
Sociology - General
Subject:
Health and Medicine-History of Medicine
Copyright:
Edition Description:
Paperback
Series:
Morality and Society Series
Publication Date:
20120231
Binding:
TRADE PAPER
Language:
English
Illustrations:
13 halftones, 1 line drawing, 1 table
Pages:
240
Dimensions:
9 x 6 in

Related Subjects

Health and Self-Help » Health and Medicine » History of Medicine
Health and Self-Help » Health and Medicine » Professional Medical Reference
History and Social Science » US History » 20th Century » General
History and Social Science » World History » General

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