Synopses & Reviews
"An ethnographic triumph. Life Exposed is as much a cultural study of science as it is a history of a nuclear disaster and a story of the politics of nation making in Ukraine. As powerful an analysis of biological citizenship and national technical processes of managing risks as I have ever read. Yet also a moving meditation on the aftermath of disaster for a poor Eastern European state, including the moral and medical morass faced by those who negotiate its world of disability."--Arthur Kleinman, Harvard University
"This extremely interesting work treats the social, political, and personal implications of Chernobyl as a prism--reflecting the political-economic, clinical, legal, and biographical processes that characterize this 'open-ended' catastrophe. There is nothing comparable. Very well written, it will be of major interest to readers in risk analysis and risk sociology, science studies, political science, as well as to anyone interested in the consequences of megatechnologies."--Ulrich Beck, author of The Brave New World of Work and What is Globalization?
"This is a marvelous piece of research on a timely topic that ought to be of great interest to a broad audience in sociocultural anthropology, to scholars and makers of public policy, to specialists in the politics of transition, and to social science and humanities scholars interested in contemporary Ukraine. Petryna's story is very moving and the material is wonderfully rich and suggestive."--Mark L. von Hagen, Columbia University, author of Soldiers in the Proletarian Dictatorship
"Life Exposed is a fascinating and highly original ethnographic analysis of the fragile political, economic, and social transition to post-Soviet citizenship in Ukraine as viewed through the Chernobyl disaster. Above all, it opens a window on a harrowing world with which most English-language readers will be unfamiliar. Through Petryna's well-written presentation of the illness narratives we slowly come to comprehend the enormity of the situation. I know of no other work that makes such a clear case for the importance of biomedical world views, practices, bureaucracies, and negotiations as foundational to contemporary citizenship."--Rayna Rapp, New York University, author of Testing Women, Testing the Fetus
Review
This extremely interesting work treats the social, political, and personal implications of Chernobyl as a prism--reflecting the political-economic, clinical, legal, and biographical processes that characterize this 'open-ended' catastrophe. There is nothing comparable. Very well written, it will be of major interest to readers in risk analysis and risk sociology, science studies, political science, as well as to anyone interested in the consequences of megatechnologies.
Review
"The book presents exceptionally rich anthropological material generated through observations and interviews. . . . The true scope of the human tragedy caused by this man-made catastrophe comes to the fore via biological stories of Petryna's informants. . . . Most of the book's heroes were directly affected by radioactive fallout and often paid a terrible price, losing their physical and mental health."
--Larissa Remennick, Journal of the American Medical Association
Review
[Chernobyl] is a dramatic and important story, and Life Exposed is a compelling book. . . . [A]n important study that will interest a wide anthropological audience.
Larissa Remennick - Journal of the American Medical Association
Review
"Petryna's ethnographic approach consciously shapes her account and illuminates it with detail that historians of the future will treasure."
--Jeanne Guillemin, Medical Humanities Review
Review
Petryna's ethnographic approach consciously shapes her account and illuminates it with detail that historians of the future will treasure. Jeanne Guillemin
Review
The book presents exceptionally rich anthropological material generated through observations and interviews. . . . The true scope of the human tragedy caused by this man-made catastrophe comes to the fore via biological stories of Petryna's informants. . . . Most of the book's heroes were directly affected by radioactive fallout and often paid a terrible price, losing their physical and mental health. Medical Humanities Review
Review
[Chernobyl] is a dramatic and important story, and Life Exposed is a compelling book. . . . [A]n important study that will interest a wide anthropological audience. Larissa Remennick - Journal of the American Medical Association
Review
Winner of the 2006 New Millenium Award, Society of Medical Anthropology
Co-Winner of the 2003 Sharon Stephens First Book Award, American Ethnological Society
Review
"Reasons of Conscience: The Bioethics Debate in Germany provides an extraordinary example of anthropologys capacity to not only document and critique social worlds but also to open up a space for political and philosophical mediations."
Review
“Stefan Sperlings
Reasons of Conscience is a highly illuminating account of the current state of consciousness about conscience in post-unification Germany. Concerned with the ethical relations between science and society, the book takes up an eclectic mix of evidence, including legal theories, concepts, metaphors, architectural design, the use of history and historiography, personal impressions, and public accounts of the prosecution of East German border guards and of debates about mandatory counseling for abortions. At its center is the work of a federal commission concerned with bioethics, specifically the regulation of embryonic stem cells. In distilling the specific way in which ethics gets defined in a democratic public sphere that prizes participation and transparency, it offers a fascinating journey through the reasoning about conscience in contemporary Germany.”
Review
“
Reasons of Conscience is a dazzling study of the intersection of science, political life, and historical memory in modern Germany. It traces the public debate surrounding the legal, moral, and ethical ramifications of stem cell research in a country acutely sensitized to avoiding the repetition of the industrialization and eugenic manipulation of life in its past. Stefan Sperling explores in stunning ethnographic detail how German political life interweaves matters of ethics, citizenship, and conscience, from the everyday practices and knowledge of ethics commissions, scientific research, and citizen conferences, to the complexities of public and parliamentary debate. Without a doubt, this is the finest ethnography of German political life and of the inner workings of the German state that I have read—it is brilliantly attentive both to the cultural and historical legacies that shape German politics as well as to the Realpolitik and complex alliances of its parliamentary statecraft.”
Synopsis
On April 26, 1986, Unit Four of the Chernobyl nuclear reactor exploded in then Soviet Ukraine. More than 3.5 million people in Ukraine alone, not to mention many citizens of surrounding countries, are still suffering the effects. Life Exposed is the first book to comprehensively examine the vexed political, scientific, and social circumstances that followed the disaster. Tracing the story from an initial lack of disclosure to post-Soviet democratizing attempts to compensate sufferers, Adriana Petryna uses anthropological tools to take us into a world whose social realities are far more immediate and stark than those described by policymakers and scientists. She asks: What happens to politics when state officials fail to inform their fellow citizens of real threats to life? What are the moral and political consequences of remedies available in the wake of technological disasters?
Through extensive research in state institutions, clinics, laboratories, and with affected families and workers of the so-called Zone, Petryna illustrates how the event and its aftermath have not only shaped the course of an independent nation but have made health a negotiated realm of entitlement. She tracks the emergence of a "biological citizenship" in which assaults on health become the coinage through which sufferers stake claims for biomedical resources, social equity, and human rights. Life Exposed provides an anthropological framework for understanding the politics of emergent democracies, the nature of citizenship claims, and everyday forms of survival as they are interwoven with the profound changes that accompanied the collapse of the Soviet Union.
Synopsis
Includes bibliographical references (p. 239-251) and index.
Synopsis
On April 26, 1986, Unit Four of the Chernobyl nuclear reactor exploded in then Soviet Ukraine. More than 3.5 million people in Ukraine alone, not to mention many citizens of surrounding countries, are still suffering the effects. Life Exposed is the first book to comprehensively examine the vexed political, scientific, and social circumstances that followed the disaster. Tracing the story from an initial lack of disclosure to post-Soviet democratizing attempts to compensate sufferers, Adriana Petryna uses anthropological tools to take us into a world whose social realities are far more immediate and stark than those described by policymakers and scientists. She asks: What happens to politics when state officials fail to inform their fellow citizens of real threats to life? What are the moral and political consequences of remedies available in the wake of technological disasters?
Through extensive research in state institutions, clinics, laboratories, and with affected families and workers of the so-called Zone, Petryna illustrates how the event and its aftermath have not only shaped the course of an independent nation but have made health a negotiated realm of entitlement. She tracks the emergence of a "biological citizenship" in which assaults on health become the coinage through which sufferers stake claims for biomedical resources, social equity, and human rights. Life Exposed provides an anthropological framework for understanding the politics of emergent democracies, the nature of citizenship claims, and everyday forms of survival as they are interwoven with the profound changes that accompanied the collapse of the Soviet Union.
Synopsis
"An ethnographic triumph. Life Exposed is as much a cultural study of science as it is a history of a nuclear disaster and a story of the politics of nation making in Ukraine. As powerful an analysis of biological citizenship and national technical processes of managing risks as I have ever read. Yet also a moving meditation on the aftermath of disaster for a poor Eastern European state, including the moral and medical morass faced by those who negotiate its world of disability."--Arthur Kleinman, Harvard University
"This extremely interesting work treats the social, political, and personal implications of Chernobyl as a prism--reflecting the political-economic, clinical, legal, and biographical processes that characterize this 'open-ended' catastrophe. There is nothing comparable. Very well written, it will be of major interest to readers in risk analysis and risk sociology, science studies, political science, as well as to anyone interested in the consequences of megatechnologies."--Ulrich Beck, author of The Brave New World of Work and What is Globalization?
"This is a marvelous piece of research on a timely topic that ought to be of great interest to a broad audience in sociocultural anthropology, to scholars and makers of public policy, to specialists in the politics of transition, and to social science and humanities scholars interested in contemporary Ukraine. Petryna's story is very moving and the material is wonderfully rich and suggestive."--Mark L. von Hagen, Columbia University, author of Soldiers in the Proletarian Dictatorship
"Life Exposed is a fascinating and highly original ethnographic analysis of the fragile political, economic, and social transition to post-Soviet citizenship in Ukraine as viewed through the Chernobyl disaster. Above all, it opens a window on a harrowing world with which most English-language readers will be unfamiliar. Through Petryna's well-written presentation of the illness narratives we slowly come to comprehend the enormity of the situation. I know of no other work that makes such a clear case for the importance of biomedical world views, practices, bureaucracies, and negotiations as foundational to contemporary citizenship."--Rayna Rapp, New York University, author of Testing Women, Testing the Fetus
Synopsis
On April 26, 1986, Unit Four of the Chernobyl nuclear reactor exploded in then Soviet Ukraine. More than 3.5 million people in Ukraine alone, not to mention many citizens of surrounding countries, are still suffering the effects.
Life Exposed is the first book to comprehensively examine the vexed political, scientific, and social circumstances that followed the disaster. Tracing the story from an initial lack of disclosure to post-Soviet democratizing attempts to compensate sufferers, Adriana Petryna uses anthropological tools to take us into a world whose social realities are far more immediate and stark than those described by policymakers and scientists. She asks: What happens to politics when state officials fail to inform their fellow citizens of real threats to life? What are the moral and political consequences of remedies available in the wake of technological disasters?
Through extensive research in state institutions, clinics, laboratories, and with affected families and workers of the so-called Zone, Petryna illustrates how the event and its aftermath have not only shaped the course of an independent nation but have made health a negotiated realm of entitlement. She tracks the emergence of a "biological citizenship" in which assaults on health become the coinage through which sufferers stake claims for biomedical resources, social equity, and human rights. Life Exposed provides an anthropological framework for understanding the politics of emergent democracies, the nature of citizenship claims, and everyday forms of survival as they are interwoven with the profound changes that accompanied the collapse of the Soviet Union.
Synopsis
"An ethnographic triumph.
Life Exposed is as much a cultural study of science as it is a history of a nuclear disaster and a story of the politics of nation making in Ukraine. As powerful an analysis of biological citizenship and national technical processes of managing risks as I have ever read. Yet also a moving meditation on the aftermath of disaster for a poor Eastern European state, including the moral and medical morass faced by those who negotiate its world of disability."--Arthur Kleinman, Harvard University
"This extremely interesting work treats the social, political, and personal implications of Chernobyl as a prism--reflecting the political-economic, clinical, legal, and biographical processes that characterize this 'open-ended' catastrophe. There is nothing comparable. Very well written, it will be of major interest to readers in risk analysis and risk sociology, science studies, political science, as well as to anyone interested in the consequences of megatechnologies."--Ulrich Beck, author of The Brave New World of Work and What is Globalization?
"This is a marvelous piece of research on a timely topic that ought to be of great interest to a broad audience in sociocultural anthropology, to scholars and makers of public policy, to specialists in the politics of transition, and to social science and humanities scholars interested in contemporary Ukraine. Petryna's story is very moving and the material is wonderfully rich and suggestive."--Mark L. von Hagen, Columbia University, author of Soldiers in the Proletarian Dictatorship
"Life Exposed is a fascinating and highly original ethnographic analysis of the fragile political, economic, and social transition to post-Soviet citizenship in Ukraine as viewed through the Chernobyl disaster. Above all, it opens a window on a harrowing world with which most English-language readers will be unfamiliar. Through Petryna's well-written presentation of the illness narratives we slowly come to comprehend the enormity of the situation. I know of no other work that makes such a clear case for the importance of biomedical world views, practices, bureaucracies, and negotiations as foundational to contemporary citizenship."--Rayna Rapp, New York University, author of Testing Women, Testing the Fetus
Synopsis
The implicit questions that inevitably underlie German bioethics are the same ones that have pervaded all of German public life for decades: How could the Holocaust have happened? And how can Germans make sure that it will never happen again? In Reasons of Conscience, Stefan Sperling considers the bioethical debates surrounding embryonic stem cell research in Germany at the turn of the twenty-first century, highlighting how the country’s ongoing struggle to come to terms with its past informs the decisions it makes today. Sperling brings the reader unmatched access to the offices of the German parliament to convey the role that morality and ethics play in contemporary Germany. He describes the separate and interactive workings of the two bodies assigned to shape German bioethics—the parliamentary Enquiry Commission on Law and Ethics in Modern Medicine and the executive branch’s National Ethics Council—tracing each institution’s genesis, projected image, and operations, and revealing that the content of bioethics cannot be separated from the workings of these institutions. Sperling then focuses his discussion around three core categories—transparency, conscience, and Germany itself—arguing that without fully considering these, we fail to understand German bioethics. He concludes with an assessment of German legislators and regulators’ attempts to incorporate criteria of ethical research into the German Stem Cell Law.
About the Author
Stefan Sperling has taught at Harvard University, Humboldt University of Berlin, and Deep Springs College in California. He lives in Stanford, California.
Table of Contents
PretextBuilding, Bildung
The Visible Public Sphere
Creating Readers
Normativity—Look It Up!
Grappling with Bioethics
1 A Tale of Two Commissions
Two Ethical Visions
Building an Ethical Imperative—The Ethics Lag
Veilings and Unveilings
New Kanzler, New Kanzleramt
Parliamentary Ethics—The Enquete Kommission
New Ethics—The Nationaler Ethikrat
Looking Back—The Enquete Kommission in History
Looking Around—The EK and the NER
Can the Nationaler Ethikrat Be Ethical?
Ethics Commissions as Saalordner
“This Is Not Bioethics”—“Bioethics Is a Dirty Word”
The Bundestag Comes to Life—Sternstunde des Parlaments
Conclusions
2 Disciplining Disorder
Learning to See the Right Things
Becoming an Ethical Insider
The First Day
Ethics Made Transparent
First Impressions
A Place for Disability
Dienstweg
Du und Sie—More Ways of Creating Insider-ness
Writing Bioethics
Grammar of Democracy
“What Are the Ethical Aspects of Organ Transplantation?”
Translation—The Semi-Legitimate Outsider Attempts to Produce a Legitimate Text
Glossary—Marking Science, Unmarking Law
The Beginning of Life
Conflict of Objectivities
Paper Wars
A Visit to the Media
The Nationaler Ethikrat Goes Public
Karlsruhe—Merging Law and Art
The Last Day of the Commission
Rules, and Rules on Following Rules
Leaving the Field—An Outsider Again
3 Transparent Fictions
Toward an Ethnography of Transparency
Transparency Today
Crafting Citizens through Bildung
Democracy Made Transparent at the German Hygiene Museum
Place—A Pedagogical Training Ground
Participants—Who Are the Citizens?
Process—Education in Citizenship
The Citizens Speak, but Have Not Heard Clearly
Expert Reactions
Conclusions
4 Conscientious Objections
Constitutions of Glass—Transparent, or Merely Fragile?
Constituting Conscience
Kants Conscience
Native Theories of Conscience—Kant as Germanys Moral Gold Standard
Public and Private Reason
Beamte—Delegated Conscience Then and Now
Tortured Conscience
Conscience and Resistance
Conscientious Objectors
Conscientious Abortions
Constraints on Conscience
Conclusions
5 A Failed Experiment
Abwicklung und Aufarbeitung
One Volk, One History?—Writing History Together
Making East Germany Transparent—And Seeing an Unrechtsstaat
Obsessive Transparency
Transparency on Display—The Stasi in Museums
Learning to See Themselves as Victims
How German Was It?
Mauerschützen—Suspending the Rechtsstaat/Erasing East German Conscience
Abortion
East Germany in the Enquete Kommission Recht und Ethik
Bioethics and the East German Public Sphere
Coda—A Very Private Place
6 Stem Cells, Interrupted
Ethical Imports at Last
“No Embryo Shall Die for German Research”
Ethics Becomes Law
Converting Ethics into Reason
Reading the Law
The Cutoff Date—An Unenforceable Line
Prohibited yet Permitted
Ethical German Research
The ZES and the RKI Reconfigure Science and Ethics
Inside the ZES
Jürgen Hescheler
Wolfgang Franz
Conclusion
Reading Borges, Reading Germany
Transparency—Text and Context
Potentialities—Setting Limits as an Ethical Act
Taboo—Dammbruch
Law and Memory—Recht und Unrecht
Acknowledgments
Notes
Bibliography
Index