Synopses & Reviews
Afflicting one in seventy Americans, Sjögren's syndrome is an autoimmune disease that commonly causes dryness of the eyes, mouth, and nose, and that can lead to complications including profound fatigue, depression, and lymphoma. While there is no cure for Sjögren's, much can be done to alleviate the suffering of patients. This extensively revised handbook offers everything you need to know to cope with this disease.
The Sjögren's Book, Fourth Edition is a comprehensive and authoritative guide, produced by the Sjögren's Syndrome Foundation and its medical advisors and edited by physician Daniel J. Wallace, a leading authority on autoimmune disorders. This expanded edition provides readers with the best medical and practical information on this disorder, bringing together the current thinking about Sjögren's in an easily readable and understandable book, with an entirely new section on lifestyle issues aimed at improving the quality of life for Sjögren's sufferers. With more than thirty chapters written by leading experts, the handbook illuminates the major clinical aspects of the syndrome and is loaded with practical tips and advice. Indeed, it offers a wide-ranging look at the many faces of Sjögren's, covering diagnosis, the various organ systems that can be affected, the possible psychological problems, and the many treatment options, as well as a concluding chapter listing the web, print, and media resources available. It is a valuable aid that patients can use while discussing their illness with their physician and an excellent resource for family members. And because Sjögren's is greatly underdiagnosed, this handbook is a particularly valuable resource for healthcare professionals.
Recognized as the bible for Sjögren's suffers, this reliable and informative guide is the first place for patients to look when they have questions about this little known but serious chronic disease.
Review
"The definitive resource on Sjogren's Syndrome-comprehensive, evidence-based, and covers the full spectrum from bench to bedside." --John H. Klippel, MD, President and CEO, Arthritis Foundation
"What a wonderful resource. This handbook will be of great value to people with Sjogren's Syndrome, to the clinicians who care for them, and to their family and friends. It addresses complex medical issues and challenging practical issues with equal clarity and thoroughness, and with genuine concern and compassion." --David Wofsy, MD, President, American College of Rheumatology; George A. Zimmerman Distinguished Professor of Rheumatology, University of California, San Francisco; Chief, Division of Rheumatology, VA Medical Center
"The Lupus Foundation of America, Inc. (LFA) commends Dr. Daniel Wallace for bringing the latest, medically sound information on Sjogren's Syndrome to individuals with the disease, including people with lupus. The revised edition of The New Sjogren's Syndrome Handbook is a must-read and we applaud the Sjogren's Syndrome Foundation for the quality and excellence of its content." --Sandra C. Raymond, President and CEO, Lupus Foundation of America, Inc.
"The definitive resource on Sjogren's Syndrome-comprehensive, evidence-based, and covers the full spectrum from bench to bedside." --John H. Klippel, MD, President and CEO, Arthritis Foundation
"What a wonderful resource. This handbook will be of great value to people with Sjogren's Syndrome, to the clinicians who care for them, and to their family and friends. It addresses complex medical issues and challenging practical issues with equal clarity and thoroughness, and with genuine concern and compassion." --David Wofsy, MD, President, American College of Rheumatology; George A. Zimmerman Distinguished Professor of Rheumatology, University of California, San Francisco; Chief, Division of Rheumatology, VA Medical Center
"The Lupus Foundation of America, Inc. (LFA) commends Dr. Daniel Wallace for bringing the latest, medically sound information on Sjogren's Syndrome to individuals with the disease, including people with lupus. The revised edition of The New Sjogren's Syndrome Handbook is a must-read and we applaud the Sjogren's Syndrome Foundation for the quality and excellence of its content." --Sandra C. Raymond, President and CEO, Lupus Foundation of America, Inc.
"Especially helpful to patients and family members is the section on quality of life issues including emotional responses, mind-body interactions, and ways to deal more effectively with problems related to sexual activity, sleep, and issues related to surgery and vaccinations. A comprehensive guide for organizations, support groups and printed materials on Sjogren's syndrome was added to the book along with contact numbers and a grouping of select books on Sjogren's syndrome." -- Carol Ann Attwood, MLS, AHIP, CHIS, MPH, RN,C Mayo Clinic Arizona, Consumer and Patient Health Information Section
Synopsis
Though Sjgren's syndrome affects one in 70 Americans, the disease remains largely misunderstood and often misdiagnosed. This autoimmune disease is marked by dryness of the eyes, nose, and mouth and affects the full musculoskeletal system. The Sjgren's Syndrome Handbook is the premier resource guide on the disease and covers the spectrum of Sjgren's issues that confront patients, family members, and health care providers alike. Like its predecessors, this edition of the Handbook is designed not only to provide factual knowledge but to encourage communication with the medical health care team regarding Sjgren's symptoms. The book contains 39 chapters covering the symptoms of the disease, its specific effects on various systems throughout the body, and symptom management. This edition also contains a new section on lifestyle issues aimed at improving the quality of life for Sjgren's sufferers.
This book has been written and edited by the Sjgren's Syndrome Foundation and leading physician, Daniel J. Wallace. It is designed to be accessible and informative and will be of interest to patients, caregivers, and healthcare providers alike.
Synopsis
Afflicting one in seventy Americans, Sjögren's syndrome is an autoimmune disease that commonly causes dryness of the eyes, mouth, and nose, and that can lead to complications including profound fatigue, depression, and lymphoma. While there is no cure for Sjögren's, much can be done to alleviate the suffering of patients. This extensively revised handbook offers everything you need to know to cope with this disease.
The Sjögren's Book, Fourth Edition is a comprehensive and authoritative guide, produced by the Sjögren's Syndrome Foundation and its medical advisors and edited by physician Daniel J. Wallace, a leading authority on autoimmune disorders. This expanded edition provides readers with the best medical and practical information on this disorder, bringing together the current thinking about Sjögren's in an easily readable and understandable book, with an entirely new section on lifestyle issues aimed at improving the quality of life for Sjögren's sufferers. With more than thirty chapters written by leading experts, the handbook illuminates the major clinical aspects of the syndrome and is loaded with practical tips and advice. Indeed, it offers a wide-ranging look at the many faces of Sjögren's, covering diagnosis, the various organ systems that can be affected, the possible psychological problems, and the many treatment options, as well as a concluding chapter listing the web, print, and media resources available. It is a valuable aid that patients can use while discussing their illness with their physician and an excellent resource for family members. And because Sjögren's is greatly underdiagnosed, this handbook is a particularly valuable resource for healthcare professionals.
Recognized as the bible for Sjögren's suffers, this reliable and informative guide is the first place for patients to look when they have questions about this little known but serious chronic disease.
About the Author
Daniel J. Wallace, MD, is a Clinical Professor of Medicine at the David Geffen School of Medicine at UCLA based at Cedars-Sinai Medical Center in Los Angeles. His many books include
All About Fibromyalgia, All About Osteoarthritis (with Nancy Lane), and
The Lupus Book.
Table of Contents
CONTENTSContributors
Preface by Steven E. Carsons, Sjögren's Syndrome Foundation Medical and Scientific Advisory Board
Introduction: Why write a book on Sjogren's by Daniel J. Wallace
PART I: INTRODUCTION AND DEFINITIONS
1. Sjögren's Syndrome Foundation
Steven Taylor
2. What is Sjögren's?
Arthur I. Grayzel
3. Who Develops Sjögren's?
Katy M. Setoode and Daniel J. Wallace
PART II: THE PATHOPHYSIOLOGY OF SJÖGREN'S
4. Pathogenesis of Sjögren's Syndrome
Ian R. Mackay
5. Genetics and Sjögren's Syndrome
John A. Ice, Christopher J. Lessard, and Kathy L. Moser
6. Sjögren's Syndrome: An Immunologic Perspective
Robert I. Fox
7. How do These Immunological Events Lead to Dryness in Systemic Disease?
Janine Austin Clayton, Serena Morrison, and Philip C. Fox
PART III: WHERE AND HOW CAN THE BODY BE AFFECTED BY SJÖGREN'S?
8. Generalized Symptoms and Signs of Sjogren's
Steven E. Carsons and Nehad R. Solomon
9. The Internal Organs in Sjogren's
Fotini C. Soliotis, Stuart S. Kassan, and Haralampos M. Moutsopoulos
10. The Central Nervous System and Sjögren's: Vasculitis and Vasculopathy
Elaine Alexander
11. The Gastrointestinal Tract
Matthew Nichols
12. Gynecologic Issues Including Pregnancy
Thomas R. Allan and Ann Parke
13. Lymphoma
Elke Theander and Eva Baecklund
14. Diseases Associated with Sjögren's Syndrome
Frederick B. Vivino
15.
Abha Gulati, Reza Dana, and Gary N. Foulks
16. The Dry Mouth
Ava J. Wu and Troy E. Daniels
17. Salivary Glands, Ears, Nose and Throat
Robert S. Lebovics
18. Lab Work: Blood Tests, Imaging, Biopsies and Beyond
Alan N. Baer
19. Why is Sjögren's Syndrome Difficult to Diagnose?
Robert F. Spiera and Harry Spiera
PART IV: THE MANAGEMENT OF SJÖGREN'S
20. Treatment of Dry Mouth
Philip C. Fox, Mabi I. Singh, and Athena Papas
21. Management of Dry Eye
S. Lance Forstot and Gary N. Foulks
22. Treatment of Other Sicca Symptoms
A. Dry Ears, Nose and Sinuses by Soo Kim Abboud
B. Dry Skin by Theresa L. Ray and John R. Fenyk, Jr.
C. Vaginal Dryness by Elisa Rodriguez Trowbridge
23. Diagnosis and Management of Fatigue
Richa Mishra and Frederick B. Vivino
24. Management of Musculoskeletal and Chronic Pain
Lan Chen
25. Management of Serious Internal Organ Manifestations
Daniel Small
26. Evaluation and Management of the Neurological Manifestations of Sjögren's Syndrome
Steven Mandel, Carla LoPinto-Khoury, Ramon Manon-Espaillat, William Neils, Scott Pello, David Roshal, and Meredith Snapp
27. Complementary and Alternative Therapies for Sjögren's Syndrome
Paul F. Howard and C. Keith Wilkinson
28. Vitamin D and Sjogren's Syndrome
Jeffrey Wilson
29. Testing New Drugs and Future Directions
Young Lee, E. William St. Clair, and Philip L. Cohen
PART V: LIVING WITH SJÖGREN'S
30. Quality of Life and Sjögren's
Barbara M. Segal
31. Lifestyle Issues - Emotional
Teri P. Rumpf and Lynn C. Epstein
32. Enhancing Resilience through Mind/Body Interactions
Margaret Baim
33. Related Topics on Living with Sjögren's
A. Sex by Anne E. Burke
B. Sleep by H. Kenneth Fisher
C. Surgery by Lynn M. Petruzzi
D. Vaccinations by Richard D. Brasington, Jr.
34. Disability and Sjögren's
Thomas D. Sutton, JD and Katherine Morland Hammitt
35. Web, Print and Media Resource Manual
Appendix 1: Glossary
Appendix 2: Products for Sjögren's Patients