In the tradition of the User's Guides to the Medical Literature, and The Rational Clinical Examination, JAMA/Care at the Close of Life is based on a widely successful series of articles appearing over the course of the last ten years in JAMA, the world's most widely read medical journal. The series is directed by Stephen McPhee, a leading authoriity of end of life care, and the chief editor of our market leading Current Medical Diagnosis and Treatment text.
Contributors
Foreword, Irene J. Higginson, BMBS, PhD, FFPHM, FRCP
Preface
Acknowledgments
A. COMMUNICATION ISSUES
1. Initiating End-of-Life Discussions with Seriously Ill Patients: Addressing the "Elephant in the Room," Timothy E. Quill, MD
2. Beyond Advance Directives: Importance of Communication Skills for Care at the End of Life, James A. Tulsky, MD
3. Decision Making at a Time of Crisis Near the End of Life, David E. Weissman, MD
4. Dealing With Conflict in Caring for the Seriously Ill: “It Was Just Out of the Question,” Anthony L. Black, MD; and Robert M. Arnold, MD
B. SYMPTOM MANAGEMENT
5. Managing an Acute Pain Crisis in a Patient With Advanced Cancer: “This Is as Much of a Crisis as a Code,” Natalie Moryl, MD; Nessa Coyle, NP, PhD; Kathleen M. Foley, MD
6. Management of Dyspnea in Patients With Far-Advanced Lung Disease: “Once I Lose It, Its Kind of Hard to Catch It…,” John M. Luce, MD; Judith A. Luce, MD
7. Management of Intractable Nausea and Vomiting in Patients at the End of Life: “I Was Feeling Nauseous All of the Time…Nothing Was Working,” Gordon J. Wood, MD; Joseph W. Shega, MD; Beth Lynch, NP; Jamie H. von Roenn, MD
8. Palliative Care for Frail Older Adults: “There Are Things I Cant Do Anymore That I Wish I Could…,” Kenneth S. Boockvar, MD, MS; Diane E. Meier, MD
9. Palliative Management of Fatigue at the Close of Life: “It Feels Like My Body Is Just Worn Out,” Sriram Yennurajalingam, MD; Eduardo Bruera, MD
10. Spinal Cord Compression in Patients With Advanced Metastatic Cancer: “All I Care About Is Walking and Living My Life," Janet L. Abraham, MD; Michael B. Bannffy, MD; Mitchel B. Harris, MD
11. Agitation and Delirium at the End of Life: “We Couldnt Manage Him," William Breitbart, MD; Yesnea Alici, MD
C. DISEASE MANAGEMENT
12. Alzheimer Disease: “Its OK, Mama, If You Want to Go, Its OK,” Ann C. Hurley, RN, DNSc; Ladislav Volicer, MD, PhD
13. Practical Considerations in Dialysis Withdrawal: “To Have That Option Is a Blessing,” Lewis M. Cohen, MD; Michael J. Germain, MD; David M. Poppel, MD
14. Overcoming the False Dichotomy of Curative vs Palliative Care for Late-Stage HIV/AIDS: “Let Me Live the Way I Want to Live, Until I Cant,” Peter A. Selwyn, MD, MPH; Marshall Forstein, MD
15. Palliative Care for Patients With Heart Failure, Steven Z. Pantilat, MD; Anthony E. Steimle, MD
16. Integrating Palliative Care for Liver Transplant Candidates: “Too Well for Transplant, Too Sick for Life,” Anne M. Larson, MD; J. Randall Curtis, MD, MPH
17. Palliative Care for Patients With Amyotrophic Lateral Sclerosis: “Prepare for the Worst and Hope for the Best,” Hiroshi Mitsumoto, MD, DSc; Judith G. Rabkin, PhD, MPH
18. Palliative Care for Patients With Head and Neck Cancer: “I Would Like a Quick Return to a Normal Lifestyle," Nathan E. Goldstein, MD; Eric Genden, MD; R. Sean Morrison, MD
D. OTHER PATIENT MANAGEMENT ISSUES
19. Complexities in Prognostication in Advanced Cancer: “To Help Them Live Their Lives the Way They Want," Elizabeth B. Lamont, MD, MS; Nicholas A. Christakis, MD, PhD, MPH
20. Caring for the Child With Cancer at the Close of Life: “There Are People Who Make It, and Im Hoping Im One of Them," Craig A. Hurwitz, MD; Janet Duncan, MSN, CPNP; Joanne Wolfe, MD, MPH
21. Sudden Traumatic Death in Children: “We Did Everything, But Your Child Didnt Survive," Robert D. Truog, MD; Grace Christ, DSW; David M. Browning, MSW; Elaine C. Meyer, PhD, RN
22. The Role of Chemotherapy at the End of Life: “When Is Enough, Enough?" Sarah E. Harrington, MD; Thomas J. Smith, MD
23. Palliative Care in the Final Days of Life: “They Were Expecting It at Any Time,” James Hallenbeck, MD
E. PSYCHOLOGICAL, SOCIAL, AND SPIRITUAL ISSUES
24. Psychological Considerations, Growth, and Transcendence at the End of Life: The Art of the Possible, Susan D. Block, MD
25. Caring for Bereaved Patients: “All the Doctors Just Suddenly Go,” Holly Gwen Prigerson, PhD; Selby C. Jacobs, MD, MPH
26. Adolescent Grief: “It Never Really Hit Me…Until It Actually Happened,” Grace H. Christ, DSW; Karolynn Siegel, PhD; Adolph E. Christ, MD, DrMSc
27. Dignity-Conserving Care-A New Model for Palliative Care: Helping the Patient Feel Valued, Harvey Max Chochinov, MD, PhD, FRSC
28. Physician Opportunities to Support Family Caregivers at the End of Life: “They Dont Know What They Dont Know,” Michael W. Rabow, MD; Joshua M. Hauser, MD; Jocelia Adams, MD
29. Spiritual Issues in the Care of Dying Patients: “…Its OK Between Me and God," Daniel P. Sulmasy, OFM, MD, PhD
F. ETHICAL ISSUES
30. Responding to Requests for Physician-Assisted Suicide: “These Are Uncharted Waters for Both of Us…," Paul B. Bascom, MD; Susan W. Tolle, MD
31. Palliative Sedation in Dying Patients: “We Turn to It When Everything Else Hasnt Worked,” Bernard Lo, MD; Gordon Rubenfeld, MD, MSc
G: CROSS-CULTURAL AND SPECIAL POPULATIONS ISSUES
32. Negotiating Cross-Cultural Issues at the End of Life: “You Got to Go Where He Lives,” Marjorie Kagawa-Singer, PhD, MA, MN, RN;Leslie J. Blackhall, MD, MTS
33. Palliative Care for Latino Patients and Their Families: “Whenever We Prayed, She Wept," Alexander K. Smith, MD, MS, MPH; Rebecca L. Sudore, MD; Eliseo J. Pérez-Stable, MD
34. End-of-Life Care for Homeless Patients: “She Says She Is There to Help Me in Any Situation,” Margot B. Kushel, MD; Christine Miaskowski, RN, PhD
35. Palliative Care for Prison Inmates: “Dont Let Me Die in Prison," John F. Linder, MSW, LCSW; Frederick J. Meyers, MD
H: SETTINGS FOR CARE (Structural Issues)
36. The Role of Hospice and Other Services: Serving Patients Who May Die Soon and Their Families, Joanne Lynn, MD, MS
37. Secondary and Tertiary Palliative Care in Hospitals, Charles F. van Gunten, MD, PhD
38. Withdrawal of Life Support: Intensive Caring at the End of Life, Thomas J. Prendergast, MD; Kathleen A. Puntillo, RN, DNSc
39. Meeting Palliative Care Needs in Post–Acute Care Settings: “To Help Them Live Until They Die,” Laura C. Hanson, MD, MPH; Mary Ersek, PhD, RN
40. Referring a Patient and Family to High-Quality Palliative Care at the Close of Life: “We Met a New Personality…With This Level of Compassion and Empathy," Joan M. Teno, MD, MS; Stephen R. Connor, PhD
I. CLINICIAN SELF-CARE
41. Care of the Dying Doctor: On the Other End of the Stethoscope, Erik Fromme, MD; J. Andrew Billings, MD
42. Self-Care of Physicians Caring for Patients at the End of Life: “Being Connected…A Key to My Survival,” Michael K. Kearney, MD; Radhule B. Weininger, MD, PhD; Mary L. S. Vachon, RN, PhD; Richard L. Harrison, PhD; Balfour M. Mount, MD
Answers to Chapter Questions
Glossary
Index