Synopses & Reviews
Gripping, raw, and beautiful, this book reveals the struggles and rewards of caring for a child with severe disability and helps professionals work more sensitively and effectively with families of children with special needs. Written with grace and candor by special education professional Beth Harry, the book chronicles the life of her daughter, Melanie, who was born with a rare form of cerebral palsy and died less than 6 years later.
Captivating the reader from page one, Dr. Harry illuminates the full spectrum of her parenting experiences—from the day her "little bird" came into the world to the day she left. Readers will come away with a deep understanding of
- the complex emotions that parents experience as they adjust to life with a child who has special needs
- the practical and emotional aspects of supporting a child with feeding difficulties, vision impairment, and limited motor skills
- the joy parents experience when their child begins to communicate and make personal connections
- the lasting impact a professional's words can have on a parent, and the need to provide positive support that allows a child to reach her full potential
- the services, therapies, and interventions that improved Melanie's quality of life-and how they've changed since her story began in the 1970s
Ideal for use as a supplemental text in courses for preservice early interventionists, early childhood special educators, special educators, and health professionals, this book gives readers an unforgettable inside look at what families experience when their child has a disability—and how to meet their needs as their child grows. And, a Reader’s Guide is included! Perfect for use in the classroom or in book clubs, the thought-provoking discussion questions help professionals absorb the book’s lessons and apply them to everyday practice with families.
Eye-opening and inspiring, Melanie, Bird with a Broken Wing will leave a lasting impression and will, as Dr. Harry urges, prepare readers "to believe the messages of their hearts as they make professional decisions."
Review
"A moving and beautifully crafted memoir…" Batya Elbaum, Ph.D.
Synopsis
Professional insight on working with special needs families-from a mom who's been on both sides of the desk
About the Author
Beth Harry, Ph.D., is a professor of special education at the University of Miami in Florida. A native of Jamaica, Beth graduated from St. Andrew High School in 1962 and went on to pursue her bachelor of arts and master's degrees at the University of Toronto and her doctorate at Syracuse University. Beth has been a teacher all of her adult life, including teaching English at the secondary and community college levels and special education at all levels. Beth's current work focuses on teaching and research related to disability, multicultural, and family issues. She lived in Trinidad for 12 years, where both her children—Melanie and Mark Teelucksingh—were born.
Table of Contents
Part I
- With a Whimper
- Melanie
- Empty Hands
- The Sweet Bird
- The Dream Is Me
- Crashing
- Gargling
- Choking
- Vomiting
- In Our Hands
- "Oh God! No!"
- The Bearer of Bad News
- Nestargel
- The Spiral Staircase
- Smiling
- Initial Assessments
- Seeing
- Interpreting
- Swallowing
- Invisible Chains
- Love and Faith
- Mummy Therapy
- A Very Sick Baby
- The Turning Point
- Sleep Feeding
- Thriving
- Naming the World
- Morning Has Broken
Part II
- Mark
- Seeking Another View
- The Forest or the Trees?
- Joan and Wendy
- The Shade of the Immortelle
- Bobath Therapy
- A Temporary Goodbye
- "Yes!"
- Back to School
- Magnificent Helpers
- A Happy Four-Year-Old
- A New Decade
- Dynamic Reassessment
- CT Scan
- Brain Gazing
- Mercedes and Elizabeth
- The Spreading Branches of the Immortelle
- A Fairy Tale Morning
- From Fairy Tale to Nightmare
- The Worst of Times
- The End
- She Looks All Right
- Good-bye
Epilogue
Melanie
References
Reader's Guide