Synopses & Reviews
What if your father had Alzheimer's disease? And what if there was a test to tell you if, as you grew older, you might develop it, too? Would you have the test? And if you did, how would the results affect the way you live your life? How would they affect your family? Your job? Your medical insurance?
Breast cancer, sickle-cell anemia, Huntington disease, muscular dystrophy -- every day, people have to face the fact that a hereditary disorder runs in their family. The painful knowledge that they or their children might be at risk for a genetic disease influences all their decisions about the future. They ask, "Is there a genetic test to let us know if we are really at risk? If there is such a test, do we really want to have it done?"
For an ever-growing number of diseases, testing is possible -- but the existence of a test can raise new and troubling questions. In this book, geneticist and science policy expert Doris Zallen explains clearly and sympathetically:
-- how genetic diseases are passed along in families
-- which hereditary diseases can be tested for using genetic technology
-- how the new DNA tests for genetic diseases work
-- what genetic tests can and can't reveal, and why the tests often do not give clear-cut answers
-- what questions one should ask doctors and genetic counselors
-- how the health care system, government policies, and insurance companies influence our options
-- what the resources are for obtaining for more information and counseling
Through the stories of real families and the choices they made about genetic testing, Zallen helps readers think through their own alternatives and discuss them with relatives. Does it Run in theFamily? is essential reading for every family coping with inherited medical conditions and for the medical and genetics professionals involved in their decisions. It will also interest all readers who seek a clear explanation of the new DNA tests and the issues surrounding them.
-- Highly readable guide to understanding the uses and limitations of genetic testing.
-- Uses real cases to explain issues of genetic chance and individual choice in hereditary disorders.
Includes bibliographical references (p. 185-187) and index.