Synopses & Reviews
Following the death of her father, journalist and hospice volunteer Ann Neumann sets out to examine what it means to die well in the United States.
When Ann Neumann’s father was diagnosed with non-Hodgkin’s lymphoma, she left her job and moved back to her hometown of Lancaster, Pennsylvania. She became his full-time caregiver — cooking, cleaning, and administering medications. When her father died, she was undone by the experience, by grief and the visceral quality of dying. Neumann struggled to put her life back in order and found herself haunted by a question: Was her father’s death a good death?
The way we talk about dying and the way we actually die are two very different things, she discovered, and many of us are shielded from what death actually looks like. To gain a better understanding, Neumann became a hospice volunteer and set out to discover what a good death is today. She attended conferences, academic lectures, and grief sessions in church basements. She went to Montana to talk with the attorney who successfully argued for the legalization of aid in dying, and to Scranton, Pennsylvania, to listen to “pro-life” groups who believe the removal of feeding tubes from some patients is tantamount to murder. Above all, she listened to the stories of those who were close to death.
What Neumann found is that death in contemporary America is much more complicated than we think. Medical technologies and increased life expectancies have changed the very definition of medical death. And although death is our common fate, it is also a divisive issue that we all experience differently. What constitutes a good death is unique to each of us, depending on our age, race, economic status, culture, and beliefs. What’s more, differing concepts of choice, autonomy, and consent make death a contested landscape, governed by social, medical, legal, and religious systems.
In these pages, Neumann brings us intimate portraits of the nurses, patients, bishops, bioethicists, and activists who are shaping the way we die. The Good Death presents a fearless examination of how we approach death, and how those of us close to dying loved ones live in death’s wake.
With unflinching honesty and searing prose, The Good Death confronts the entwined realities of dying and surviving in all their complexity and pathos. It is that rare book that is at once a tremendously moving reflection and a clear-eyed approach to moments we all must face.” Peter Manseau, author of One Nation Under Gods
About the Author
Ann Neumann is currently a visiting scholar at The Center for Religion and Media at New York University where she is a contributing editor to The Revealer, founded by journalist Jeff Sharlet in 2003. For The Revealer she writes a monthly column, “The Patient Body,” which examines issues at the intersection of religion and medicine. Her articles have appeared at the The New York Times, The Baffler, The Nation, Bookforum, New York Law Review, Guernica magazine (where she is a contributing nonfiction editor), and The Guardian.