Synopses & Reviews
Synopsis
A sharp-eyed exploration of the promise and peril of having children in an age of genetic tests and interventions
Is DNA testing a triumph of modern medicine or a Pandora s box of possibilities? Is screening for disease in an embryo a humane form of family planning or a slippery slope toward eugenics? And, more practically, how do we navigate the dizzying and expanding array of tests available, with more appearing every day?
In The Gene Machine, the award-winning journalist Bonnie Rochman addresses these questions and more, guiding us through the new frontiers of gene technology and how it has forever changed medicine, bioethics, and the factors that shape a family. Rochman takes an authoritative look at the latest hot-button issues in the world of pre- and postnatal testing and tells the stories of women and men struggling to understand the variety of tests and grappling with their results revelations that are sometimes joyous, sometimes heartbreaking, and often profound.
Propelled by human narratives and meticulously reported, The Gene Machine introduces us to scientists working to unlock the secrets of the human genome; gene counselors and spiritual advisers helping parents manage this complex new reality; and, of course, parents themselves, including the author, who glimpse the genetic futures of their children. The Gene Machine is both a scientific road map and a meditation on our power to shape the future, one that gets to the very core of what it means to be human.
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Synopsis
A sharp-eyed exploration of the promise and peril of having children in an age of genetic tests and interventions
Is screening for disease in an embryo a humane form of family planning or a slippery slope toward eugenics? Should doctors tell you that your infant daughter is genetically predisposed to breast cancer? If tests revealed that your toddler has a genetic mutation whose significance isn't clear, would you want to know?
In The Gene Machine, the award-winning journalist Bonnie Rochman deftly explores these hot-button questions, guiding us through the new frontier of gene technology and how it is transforming medicine, bioethics, health care, and the factors that shape a family. Rochman tells the stories of scientists working to unlock the secrets of the human genome; genetic counselors and spiritual advisers guiding mothers and fathers through life-changing choices; and, of course, parents (including Rochman herself) grappling with revelations that are sometimes joyous, sometimes heartbreaking, but always profound. She navigates the dizzying and constantly expanding array of prenatal and postnatal tests, from carrier screening to genome sequencing, while considering how access to more tests is altering perceptions of disability and changing the conversation about what sort of life is worth living and who draws the line. Along the way, she highlights the most urgent ethical quandary: Is this technology a triumph of modern medicine or a Pandora's box of possibilities?
Propelled by human narratives and meticulously reported, The Gene Machine is both a scientific road map and a meditation on our power to shape the future. It is a book that gets to the very core of what it means to be human.