Synopses & Reviews
The Deep South has seen a 36 percent increase in AIDS cases while the rest of the nation has seen a 2 percent decline. Many of the underlying reasons for the diseaseandrsquo;s continued spread in the regionandmdash;ignorance about HIV, reluctance to get tested, non-adherence to treatment protocols, resistance to behavioral changesandmdash;remain unaddressed by policymakers.
In this extensively revised second edition, Kathryn Whetten and Brian Wells Pence present a rich discussion of twenty-five ethnographic life stories of people living with HIV in the South. Most importantly, they incorporate research from their recent quantitative study, andldquo;Coping with HIV/AIDS in the Southeastandrdquo; (CHASE), which includes 611 HIV-positive patients from North Carolina, South Carolina, Georgia, Alabama, and Louisiana. This new edition continues to bring the participantsandrsquo; voices to life while highlighting how the CHASE study confirmed many of the themes that originally emerged from the life histories. This is the first cohesive compilation of up-to-date evidence on the unique and difficult aspects of living with HIV in the Deep South.
Review
andquot;The South has been the epicenter of the U.S. HIV epidemic for the last decade, and the authors have used a balanced set of information from both surveys and personal observations to present a poignant and accessible portrait of the complexities of human health and disease.andquot;
Review
"
You’re the First One I’ve Told offers indispensable insight into the ways that large-scale social forces shape the lives of—and become
embodied by—those facing AIDS.”
MD, Duke Global Health Institute
Review
andquot;Expertly linking patientsandrsquo; pasts to their current struggles to obtain health care and support, the stories related here contextualize AIDS within the lived experiences of the poor and marginalized communities that bear the greatest burden of HIV in the American South. This book offers indispensable insight into the ways that large-scale socialand#160;forces shape the lives of those facing AIDS.andquot;
Synopsis
This extensively revised second edition presents twenty-five different case studies and incorporates research from the authorsandrsquo; recent quantitative study, andldquo;Coping with HIV/AIDS in the Southeastandrdquo; (CHASE). CHASE includes 611 HIV-positive patients from eight clinics in North Carolina, South Carolina, Georgia, Alabama, and Louisiana. This is the first cohesive compilation of up-to-date evidence on the unique and difficult aspects of those living with HIV in the Deep South.
Synopsis
The Deep South has seen a 36 percent increase in AIDS cases while the rest of the nation has seen a 2 percent decline. Many of the underlying reasons for the disease's continued spread in the region--ignorance about HIV, reluctance to get tested, non-adherence to treatment protocols, resistance to behavioral changes--remain unaddressed by policymakers.
In this extensively revised second edition, Kathryn Whetten and Brian Wells Pence present a rich discussion of twenty-five ethnographic life stories of people living with HIV in the South. Most importantly, they incorporate research from their recent quantitative study, "Coping with HIV/AIDS in the Southeast" (CHASE), which includes 611 HIV-positive patients from North Carolina, South Carolina, Georgia, Alabama, and Louisiana. This new edition continues to bring the participants' voices to life while highlighting how the CHASE study confirmed many of the themes that originally emerged from the life histories. This is the first cohesive compilation of up-to-date evidence on the unique and difficult aspects of living with HIV in the Deep South.
Synopsis
This extensively revised second edition presents twenty-five different case studies and incorporates research from the authors’ recent quantitative study, “Coping with HIV/AIDS in the Southeast” (CHASE). CHASE includes 611 HIV-positive patients from eight clinics in North Carolina, South Carolina, Georgia, Alabama, and Louisiana. This is the first cohesive compilation of up-to-date evidence on the unique and difficult aspects of those living with HIV in the Deep South.
About the Author
KATHRYN WHETTEN, MPH, PhD, is a professor of public policy and global health at Duke University and the director of the Center for Health Policy and Inequalities Research. She is the author of Drinkers, Drivers, and Bartenders: Balancing Private Choice and Public Accountability.
BRIAN W. PENCE, MPH, PhD, is an associate professor of community and family medicine and global health at Duke Universityandrsquo;s Center for Health Policy and Inequalities Research.
Table of Contents
List of Figures and Tables
Preface to the Second Edition
Acknowledgments
1. Setting the Stage
2. Voices of the Past
3. Enter HIV
4. Abuse, Trauma, and HIV
5. Distrust, Conspiracy, Confidentiality, and Provider Relationships
6. Benefit Systems
7. The Importance of Children
8. Sex, Love, Family, and Other Support
9. Theoretical Framework
10. The Future
Appendix A
Appendix B
Appendix C
Read by Interviewer to Respondent
References
Index