Synopses & Reviews
In the wake of current public services turmoil, this book reexamines the collective compact that created the UK’s public health services in the 1940s. Drawing on testimony from service users and service providers, the contributors explore topics such as new ways of living and working with long-term health conditions, meaningful and effective approaches to service redesign, use of information technology, leadership, coproduction, and quality of service. Better Health in Harder Times is a book composed of short, accessible contributions that will be of interest to a wide range of social-policy readers.
Review
An engagingly written book that offers a detailed and thoughtful analysis of an innovative experiment in citizen participation in healthcare decision-making. This timely study raises a host of significant challenges for democratic theorists and practitioners alike. Graham Smith, Professor of Politics, School of Social Sciences, University of Southampton, UK
Review
This book challenges current ideas on what constitutes a 'good enough' life for people with intellectual disabilities and proposes new ideas on how to make a truly 'good life' possible. Dorothy Atkinson, The Open University
Review
If you need to be challenged to reflect on what 'a good life' should mean for people with intellectual disabilities this book is an excellent place to begin that quest. Gordon Grant, Emeritus Professor, Centre for Health and Social Care Research, Sheffield Hallam University
Synopsis
For years the NHS has been the most trusted of public institutions and the envy of many around the world. But today there is turmoil. Painful shortcomings in clinical care and patient experience, together with funding cuts, threaten to dig deep into service levels and standards. Seventy years of technically advanced medicine provided free to the population has produced a widespread perception of patients as passive consumers of health care. This book explores how we may renew for our times the collective compact that created our public services in the 1940s. Voices from service users and service providers show how this can be done. They offer testimony of what goes wrong and what can be put right when working together becomes the norm. Sections explore new ways of living and working with long-term conditions, more meaningful and effective approaches to service redesign, use of information technology, leadership, co-production and creating and accounting for quality. Accessible to a wide range of readers, with short, accessible contributions, this is a book to provoke and inspire.
Synopsis
This book renews the collective compact that created our public services in the 1940s using voices from service users and service providers. Sections explore long-term conditions, service redesign, information technology, leadership, co-production and quality.
Synopsis
Involving citizens in policy decision-making processes - deliberative democracy - has been a central goal of the Labour government since it came to power in 1997. But what happens when members of the public are drawn into unfamiliar debate, with unfamiliar others, in the unfamiliar world of policy making at national level? This book sets out to understand the contribution that citizens can realistically be expected to make.
Synopsis
What does it mean to live a good life? Why has it proved so difficult for people with intellectual disabilities to live one? What happens when we make a good life the centre of our consideration of people with intellectual disabilities? These questions are explored through a re-examination of ideas from philosophy and social theory, and through personal life stories. This important and timely book provides an analysis and critique of current policies and underpinning ideologies in relation to people with intellectual disabilities and explores ways in which a good life may be made more attainable.
About the Author
Celia Davies is professor emeriti of health care at the Open University.Jan Walmsley is visiting professor of leadership and workforce development at London South Bank University and visiting professor in the history of learning disability at the Open University. Mike Hales was a senior research fellow at the Centre for Research in Innovation Management at Brighton Business School at the University of Brighton. Ray Flux is director of Civil Eyes Development Ltd.
Table of Contents
Contributors biographical notes
Acknowledgements
List of abbreviations
Introduction
Section 1: What business are we really in? Managing and self-managing well-being
1. Money matters! Personal budgets and direct payments
Nan Carle
2. Mainstreaming a chronic disease self-management programme—reflections on the NHS Expert Patients Programme
Jim Phillips
3. Health promotion—connecting people and place
Angela Flux
4. Is a long-term condition a disability? Schools of thought and language
Jan Walmsley
5. Life as an active citizen—full engagement, hard work and well-being
Mike Hales
6. Genuine partnership
Laurie Bryant
7. Overview: Looking for a new social contract around the NHS
Ray Flux
Section 2: Questions of quality—not just ticking boxes
8. A cataract journey
Jan Walmsley
9. Using Experience-Based Co-Design to make cancer services more patient-centred
Catherine Dale
10. How patient stories can change the commissioning culture
Georgina Craig
11. Turning ‘care into ‘share
John Worth
12. Let me tell you a story
Tim Craft
13. Quality, leadership and moral responsibility
Rick Stern
14. Accounting for quality—eight tips for producing reports for the public about the quality of care
Catherine Foot
15. Overview: Quality—fantastic journey but bumpy ride?
Celia Davies
Section 3: Governance—how can we really work together?
16. Reminiscences of an advocate
David Sines
17. Researching together—pooling ideas, strengths and experiences
Rohhss Chapman and Lou Townson
18. Becoming accepted
Kate Ansell
19. Supporting ‘experts by experience—a champion idea
Beryl Furr
20. Engaging communities—sharing the learning
Jane Keep
21. The engagement industry—some personal reflections
David Gilbert
22. Overview: Colliding worlds—the journey towards collaborative governance
Celia Davies
Section 4: How can information technology work for well-being? Data, dialogues and digital media
23. Records help us make sense of our lives
Yvonne Bennett
24. Records access and empowered patients, 2017
Brian Fisher
25. Learning to build a high-quality information system to support high-quality renal care
Lawrence Goldberg
26. Embracing social technology
Tris Taylor
27. Enlightening the next user
Neil Bacon
28. Patients stories—digital gifts that can change the world
Paul Hodgkin
29. Temptations of cheap data
Valerie Iles
30. Overview: Innovation in cultures, feelings and roles
Mike Hales
Section 5: What kind of learning, what kind of leadership?
31. Managers and leadership, now and then
Alastair Mant
32. Harnessing a Hydra—managing to change the NHS
Celia Davies
33. “Ask the patient what they want”
Jon Willis
34. The heart and art of leadership
Kate Hall
35. Health leadership for the 21st century—a new, holistic, co-productive endeavour
Ed Nicol and Simon Eaton
36. Forty years of innovation in community responses to the needs of people with learning difficulties
Simon Duffy
37. From hard to reach to within reach—the ‘how of community engagement in the era of the Big Society
Malik Gul
38. Disciplined conversation, facilitated dialogue, measured progress
Tim Sims and Fiona Reed
39. Leadership as if people matter—the Innovative Headteachers Programme
Ian Cunningham
40. Overview: What kind of leadership?
Jan Walmsley
Postscript: Better health in harder times—towards a sustainable NHS
References
Index