In the wake of current public services turmoil, this book reexamines the collective compact that created the UKandrsquo;s public health services in the 1940s. Drawing on testimony from service users and service providers, the contributors explore topics such as new ways of living and working with long-term health conditions, meaningful and effective approaches to service redesign, use of information technology, leadership, coproduction, and quality of service. Better Health in Harder Times is a book composed of short, accessible contributions that will be of interest to a wide range of social-policy readers.
For years the NHS has been the most trusted of public institutions and the envy of many around the world. But today there is turmoil. Painful shortcomings in clinical care and patient experience, together with funding cuts, threaten to dig deep into service levels and standards. Seventy years of technically advanced medicine provided free to the population has produced a widespread perception of patients as passive consumers of health care. This book explores how we may renew for our times the collective compact that created our public services in the 1940s. Voices from service users and service providers show how this can be done. They offer testimony of what goes wrong and what can be put right when working together becomes the norm. Sections explore new ways of living and working with long-term conditions, more meaningful and effective approaches to service redesign, use of information technology, leadership, co-production and creating and accounting for quality. Accessible to a wide range of readers, with short, accessible contributions, this is a book to provoke and inspire.
This book renews the collective compact that created our public services in the 1940s using voices from service users and service providers. Sections explore long-term conditions, service redesign, information technology, leadership, co-production and quality.
Contributorsand#8217; biographical notes
Acknowledgements
List of abbreviations
Introduction
Section 1: What business are we really in? Managing and self-managing well-being
1. Money matters! Personal budgets and direct payments
and#160;and#160;and#160;and#160;and#160; Nan Carle
2. Mainstreaming a chronic disease self-management programmeand#8212;reflections on the NHS Expert Patientsand#8217; Programme
and#160;and#160;and#160;and#160;and#160; Jim Phillips
3. Health promotionand#8212;connecting people and place
and#160;and#160;and#160;and#160;and#160; Angela Flux
4. Is a long-term condition a disability? Schools of thought and language
and#160;and#160;and#160;and#160;and#160; Jan Walmsley
5. Life as an active citizenand#8212;full engagement, hard work and well-being
and#160;and#160;and#160;and#160;and#160; Mike Hales
6. Genuine partnership
and#160;and#160;and#160;and#160;and#160; Laurie Bryant
7. Overview: Looking for a new social contract around the NHS
and#160;and#160;and#160;and#160;and#160; Ray Flux
Section 2: Questions of qualityand#8212;not just ticking boxes
8. A cataract journey
and#160;and#160;and#160;and#160;and#160; Jan Walmsley
9. Using Experience-Based Co-Design to make cancer services more patient-centred
and#160;and#160;and#160;and#160;and#160; Catherine Dale
10. How patient stories can change the commissioning culture
and#160;and#160;and#160;and#160;and#160; Georgina Craig
11. Turning and#8216;careand#8217; into and#8216;shareand#8217;
and#160;and#160;and#160;and#160;and#160; John Worth
12. Let me tell you a story
and#160;and#160;and#160;and#160;and#160; Tim Craft
13. Quality, leadership and moral responsibility
and#160;and#160;and#160;and#160;and#160; Rick Stern
14. Accounting for qualityand#8212;eight tips for producing reports for the public about the quality of care
and#160;and#160;and#160;and#160;and#160; Catherine Foot
15. Overview: Qualityand#8212;fantastic journey but bumpy ride?
and#160;and#160;and#160;and#160;and#160; Celia Davies
Section 3: Governanceand#8212;how can we really work together?
16. Reminiscences of an advocate
and#160;and#160;and#160;and#160;and#160; David Sines
17. Researching togetherand#8212;pooling ideas, strengths and experiences
and#160;and#160;and#160;and#160;and#160; Rohhss Chapman and Lou Townson
18. Becoming accepted
and#160;and#160;and#160;and#160;and#160; Kate Ansell
19. Supporting and#8216;experts by experienceand#8217;and#8212;a champion idea
and#160;and#160;and#160;and#160;and#160; Beryl Furr
20. Engaging communitiesand#8212;sharing the learning
and#160;and#160;and#160;and#160;and#160; Jane Keep
21. The engagement industryand#8212;some personal reflections
and#160;and#160;and#160;and#160;and#160; David Gilbert
22. Overview: Colliding worldsand#8212;the journey towards collaborative governance
and#160;and#160;and#160;and#160;and#160; Celia Davies
Section 4: How can information technology work for well-being? Data, dialogues and digital media
23. Records help us make sense of our lives
and#160;and#160;and#160;and#160;and#160; Yvonne Bennett
24. Records access and empowered patients, 2017
and#160;and#160;and#160;and#160;and#160; Brian Fisher
25. Learning to build a high-quality information system to support high-quality renal care
and#160;and#160;and#160;and#160;and#160; Lawrence Goldberg
26. Embracing social technology
and#160;and#160;and#160;and#160;and#160; Tris Taylor
27. Enlightening the next user
and#160;and#160;and#160;and#160;and#160; Neil Bacon
28. Patientsand#8217; storiesand#8212;digital gifts that can change the world
and#160;and#160;and#160;and#160;and#160; Paul Hodgkin
29. Temptations of cheap data
and#160;and#160;and#160;and#160;and#160; Valerie Iles
30. Overview: Innovation in cultures, feelings and roles
and#160;and#160;and#160;and#160;and#160; Mike Hales
Section 5: What kind of learning, what kind of leadership?
31. Managers and leadership, now and then
and#160;and#160;and#160;and#160;and#160; Alastair Mant
32. Harnessing a Hydraand#8212;managing to change the NHS
and#160;and#160;and#160;and#160;and#160; Celia Davies
33. and#8220;Ask the patient what they wantand#8221;
and#160;and#160;and#160;and#160;and#160; Jon Willis
34. The heart and art of leadership
and#160;and#160;and#160;and#160;and#160; Kate Hall
35. Health leadership for the 21st centuryand#8212;a new, holistic, co-productive endeavour
and#160;and#160;and#160;and#160;and#160; Ed Nicol and Simon Eaton
36. Forty years of innovation in community responses to the needs of people with learning difficulties
and#160;and#160;and#160;and#160;and#160; Simon Duffy
37. From hard to reach to within reachand#8212;the and#8216;howand#8217; of community engagement in the era of the Big Society
and#160;and#160;and#160;and#160;and#160; Malik Gul
38. Disciplined conversation, facilitated dialogue, measured progress
and#160;and#160;and#160;and#160;and#160; Tim Sims and Fiona Reed
39. Leadership as if people matterand#8212;the Innovative Headteachers Programme
and#160;and#160;and#160;and#160;and#160; Ian Cunningham
40. Overview: What kind of leadership?
and#160;and#160;and#160;and#160;and#160; Jan Walmsley
Postscript: Better health in harder timesand#8212;towards a sustainable NHS
References
Index