Synopses & Reviews
Synopsis
Introduction; Katherine Runswick-Cole, Tillie Curran and Kirsty Liddiard.- Part 1: Experience and Building Understandings.- 1. The Texting Project; Blair Manns and Sarah Manns.- 2. The Tree of Participation: our thoughts about growing a culture of participation between young people, parents and health team staff; Jennifer McElwee, David Cox, Tony Cox, Rosemary Holland, Thomas Holland, Theresa Mason, Chloe Pearce, Caroline Sobey, Julie Bugler, Andy James and Beverley Pearce.- 3. "What can I say?"; Wendy Merchant and Jamie Merchant.- 4. The Heaviest Burdens and Life's Most Intense Fulfilment: a retrospective and re-understanding of my experiences with childhood liver disease and transplantation; Sophie Savage.- 5. My Sister, My World: from second Mum to Nurse; Rebecca Whitehead.- 6. Being a Disabled Woman and Mum: my journey from childhood; Jo Skitteral.- 7. Going 'off grid': A mother's account of refusing disability; Kim Davies.- Part 2: Research Studies.- Part 2.1: Research Involving Disabled Children and Young People.- 8. The social relational model of Deaf childhood in action; Kristin Snoddon and Kathryn Underwood.- 9. Shared Perspectives: the embodiment of disabled children and young people's voices about participating in recreational activities; Dawn Pickering.-10. Making Space for the Embodied Participation of Young Disabled Children in a Sure Start Children's Centre; Heloise Maconochie.- 11. Interrogating the 'normal' in the 'inclusive' early childhood classroom: silence, taboo and the 'elephant in the room'; Karen Watson.- 12. The kids are alright-they have been included for years; Ben Whitburn.- 13. Expressive eyebrows and beautiful bubbles: Playfulness and children with profound impairments; Debby Watson, Alison Jones and Helen Potter.- 14. My Friends and Me. Friendship and identity following acquired brain injury in young people; Sandra Dowling, Roy McConkey, Marlene Sinclair.- 15. Thinking and Doing Consent and Advocacy in Disabled Children's Childhood Studies Research; Jill C. Smith.- Part 2.2: Research Involving Parents of Disabled Children, Young people and Adult Children.- 16. The Making of a 'maternal commons; re-thinking motherhood through disability; Katherine Runswick-Cole and Dan Goodley.- 17. Autism and Gender in Context: intersectionality in research with fathers of children with the label of autism; Joanne Heeney.- 18. The construction of life trajectories: reflections, research and resolutions for young people with behavioural disabilities;Tania Watson.- 19. Personalisation and Parents: the formalisation of family care for adult children with learning disabilities in England; Barbara Coles.- Part 3: Ethics and values.- 20. Anonymity, Confidentiality and Informed Consent: exploring ethical quandaries and dilemmas in Research with and about disabled children's childhoods; Liz Thackray.- 21. Supporting Families in Raising Disabled Children to Enhance African Child Development; Judith McKenzie and Tsitsi Chataika.- 22. Normalcy, Intersectionality and Ableism: teaching about and around 'inclusion' to future educators; Jenny Slater and Elizabeth Chapman.- 23. "Just Sumaira: Not Her, Them or It"; Sumaira Nasseem.- Part 4: Theory and Critical Ways of Thinking.- 24. What's wrong with 'special'? Thinking differently in New Zealand teacher education about disabled children and their lives; Gill Rutherford and Jude MacArthur.- 25. A Diversity of Crip Childhoods: Considering the Looked After Childhood; Luke Jones and Kirsty Liddiard.- 26. A Relational Understanding of Language Impairment - children's experiences in the context of their social worlds; Helen Hambly.- 27. Resilience in the Lives of Disabled Children: a Many Splendoured Thing; Katherine Runswick-Cole, Dan Goodley and Rebecca Lawthom.- 28. Growing up disabled: Impairment, familial relationships and identity; Brian Watermeyer.- 29. Autistic development, trauma and personhood: beyond the frame of the neoliberal indi